So, I have just completed a questionnaire from the amazing ShiftMS forum. All about the future of MS care. Basically the whole questionnaire was asking how I would feel if all the medical MS services I use were to stop being face-to-face and become telephone or online services. To say I was furious was an… Continue reading The Future of MS Care
Before Lockdown 1, 2.0 or 3, before I had all this time to think about life, I hadn't realised how much of myself I have lost since being diagnosed with MS. I'm not even sure how it happened. I suppose I have just been focused, understandably, on dealing with the diagnosis, what this disease means… Continue reading Regaining what was once lost – A Chronic Illness story
I am a naturally anxious person. First day at a new job, going somewhere I am not 100 percent sure where it is, hospital visits, not knowing exactly what to expect, you name it, I will worry about it! Therefore, I didn't really relate anxiety to MS specifically at first. However, after reading comments and… Continue reading Anxiety and Me
Without sounding like the Mamma Mia sequel, here we go again. On Monday night, another national lockdown was announced by the Prime Minister to try and combat this new strain of Covid 19. Current figures state that in the UK, 1 in 50 people are now infected with Corona virus. The Prime Minister casually mentioned… Continue reading Lockdown 3 -Here we go again…
So, don't tell anyone but I can now say that I will be 30 next year! NEXT YEAR! Granted, I need to get 29 out of the way first but still, next year?!?!? The thing that makes me laugh the most is that I do not feel anywhere near like a grown up yet. My… Continue reading #30before30
When does it get too late to be saying ‘Happy New Year’? I am, as always, a little late to the party. Oops. My main resolution this year is to blog more. I was finding before Christmas that MS was all I was thinking about. I was reading about people who weren’t doing so well… Continue reading Happy New Year – 2019!
Here is Part 2 of my A to Z of MS. I really hope it has explained what it is like living with MS and made some of you readers out there feel a little less alone. It was lovely to hear some stories about it via Instagram too.
Over on my Instagram account @manchesterspirit I have been doing the #AtoZofMS, posting a letter on each day of July, well, with some exceptions because it is me and I am forgetful! The aim of this was to create a comprehensive guide to MS, from the view point of helping someone who has just been… Continue reading The A to Z of MS – Part 1
I have been thinking for a while about doing one of those challenges you see so often on social media. Something based around posting everyday and MS obviously. I put it into Google and found the A to Z Challenge website: http://www.a-to-zchallenge.com/2017/02/announcing-2017-blogging-from-to-z.html I know it was an April challenge but better late than never!! So I… Continue reading The A to Z of MS
So I went to see my amazing MS Nurse last week for my latest 3 month check up. I get so cross that the media in the UK constantly criticise the NHS. I know that sometimes wait times for appointments are long but having spent a lot of time going to hospital appointments in the… Continue reading Latest Medical Appointment